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News Archives - EURORDIS

About Medicines For Rare Diseases
https://www.eurordis.org/category/news/ - Details - Similar

Home - EURORDIS

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.
https://www.eurordis.org/ - Details - Similar

What is Rare Disease Day? - Rare Disease Day 2025

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
https://www.rarediseaseday.org/what-is-rare-disease-day/ - Details - Similar

apitegromab (SRK-015) / Scholar Rock

News for apitegromab (SRK-015) / Scholar Rock
https://delta.larvol.com/Products/?ProductId=da5742d6-4c36-4d42-8e54-b74f8ef7b56c&Index=0 - Details - Similar

Rare Disease Day 2025

Raising awareness for patients, families and carers around the world that are affected by rare diseases.
https://www.rarediseaseday.org/ - Details - Similar

Alliance For Cryoglobulinemia Partners - Alliance for Cryoglobulinemia

The National Organization for Rare Disorders (NORD)
https://allianceforcryo.org/about-us/partners/ - Details - Similar

Health Tips, Health Care And Fitness Tips, Health News, Home Remedies

CAAS INDIA, providing you latest news article on ankylosing spondylitis, autoimmune diseases, rare diseases, cancer health, diabetes, fitness, beauty, diet, yoga, weight training, pregnancy, parenting, diseases home re
https://www.caasindia.in/ - Details - Similar

CLIRINX - IT for Epilepsy Rare Diseases

Welcome to CLIRINX! We're dedicated to advancing epilepsy and rare disease research through improved IT tools. Whether you're a researcher, advocate, or seeking resources, we're here to enhance your data collection proce
https://www.clirinx.com/ - Details - Similar

CLIRINX - IT for Epilepsy Rare Diseases

Welcome to CLIRINX! We're dedicated to advancing epilepsy and rare disease research through improved IT tools. Whether you're a researcher, advocate, or seeking resources, we're here to enhance your data collection proce
https://clirinx.com/ - Details - Similar

Public meeting: FDA Rare Disease Day 2024 - 03/01/2024 | FDA

FDA will host Rare Disease Day, a virtual public meeting, on March 1, 2024 in global observance of Rare Disease Week. This year’s Rare Disease Day is dedicated to patients and health care professionals.
https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/public-meeting-fda-rare-disease-day-2024-03012024 - Details - Similar

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