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News Archives - EURORDIS

About Medicines For Rare Diseases
https://www.eurordis.org/category/news/ - Details - Similar

Home - EURORDIS

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.
https://www.eurordis.org/ - Details - Similar

Rare Disease Policy - GNH India - Exporter, Distributor, Wholesaler, C

What is a Rare Disease? A rare disease, also known as an orphan disease, is a medical condition that affects a small percentage of the population. In most
https://www.gnhindia.com/rare-disease-policy/ - Details - Similar

What is Rare Disease Day? - Rare Disease Day 2025

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
https://www.rarediseaseday.org/what-is-rare-disease-day/ - Details - Similar

Rare Disease Day 2025

Raising awareness for patients, families and carers around the world that are affected by rare diseases.
https://www.rarediseaseday.org/ - Details - Similar

HypoGal Website Homepage - HypoGal Website

MY STORY PAID SURVEY RARE DISEASES RESOURCES/ REFERENCES ALTERNATIVE MEDICATIONS MEDICAL PHOTOS HYPOGAL POSTS TESTIMONIALS Your blog and website are informative. Sometimes with a rare condition people, including doctors
https://hypogal.com/ - Details - Similar

Alliance For Cryoglobulinemia Partners - Alliance for Cryoglobulinemia

The National Organization for Rare Disorders (NORD)
https://allianceforcryo.org/about-us/partners/ - Details - Similar

Public meeting: FDA Rare Disease Day 2024 - 03/01/2024 | FDA

FDA will host Rare Disease Day, a virtual public meeting, on March 1, 2024 in global observance of Rare Disease Week. This year’s Rare Disease Day is dedicated to patients and health care professionals.
https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/public-meeting-fda-rare-disease-day-2024-03012024 - Details - Similar

CLIRINX - IT for Epilepsy Rare Diseases

Welcome to CLIRINX! We're dedicated to advancing epilepsy and rare disease research through improved IT tools. Whether you're a researcher, advocate, or seeking resources, we're here to enhance your data collection proce
https://clirinx.com/ - Details - Similar

CLIRINX - IT for Epilepsy Rare Diseases

Welcome to CLIRINX! We're dedicated to advancing epilepsy and rare disease research through improved IT tools. Whether you're a researcher, advocate, or seeking resources, we're here to enhance your data collection proce
https://www.clirinx.com/ - Details - Similar

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